Little Mix’s Jesy Nelson shares a photo of his daughter’s feeding tube
Little Mix alum Jesse Nelson offers a glimpse into her life after her twin daughters, Story and Ocean, were both diagnosed with a serious muscle disease.
“I am so in love with her little smile,” Nelson, 34, wrote via her Instagram Stories, sharing a sweet photo of one of her sleeping babies. The footage showed a feeding tube attached to the child’s face.
Nelson revealed earlier this month that both of her daughters had been diagnosed with Spinal Muscular Atrophy (SMA) Type 1. SMA is a genetic condition that causes worsening muscle weakness, according to the Cleveland Clinic. There are five types of SMA, which can vary in severity.
“A few months ago my mother noticed that the girls were not showing as much movement in their legs as they should,” Nelson said in a Jan. 4 social media video. “[It] wasn’t really a concern for me at the time because from the moment I left the NICU I was told, ‘Your babies were born prematurely, so don’t compare your babies to other babies. They won’t reach the same milestones. Take them as they are. ”
Nelson and her fiance, Zion Fosterwelcomed their children prematurely in May 2025 after the singer’s high-risk twin pregnancy.
After Nelson and Foster, 27, brought their daughters home, they began noticing certain “signs” that would become characteristic of the girls’ SMA diagnoses.
“They struggled to eat properly. It gradually became less and less,” she said. “Long story short, after the most grueling three [or] Four months and endless appointments, the girls have now been diagnosed with a serious muscle disease called SMA Type 1. Type 1 is the most serious type a baby can get. It stands for spinal muscular atrophy, which can affect any muscle in the body, down to the legs, arms, breathing, swallowing and…over time it kills the muscles in the body.”
Nelson continued, “If not treated in time, your baby’s life expectancy will not extend past 2 years of age.”
Once Story and Ocean were diagnosed with SMA, doctors told Nelson and Foster that their children would likely never “walk” and would need a wheelchair.
“They’re probably never going to get their strength back, so they’re going to be disabled. The best we can do right now is treat them and just hope for the best,” Nelson said. “I’m so grateful because if they don’t have it, they’re going to die. It’s been endless, endless numbers of hospital appointments. I almost feel like the hospital has become my second home.”
Above all, Nelson is just happy that her babies are “still here” and have undergone treatments.
“They have had their treatment and I truly believe my girls will defy all odds,” she concluded. “With the right help, they will fight this and continue to do things that have never been done before.”
Nelson later shared an update about her children during an interview on Wednesday, January 7, in Britain This morning talk show.
“They’re still smiling, they’re still happy,” she said. “They have each other, and that’s the most important thing I’m so grateful for, because they could do this on their own, but they’re twins and they’re going through this together, and I think that’s beautiful. All I can do is just do my best to be there for them. Give them positive energy.”
